Walking is Becoming More Difficult

I know it's been a while since I've offered an update. For one thing, I've been waiting for some "real news" which I hope will come once we visit Dr. Parpia on Monday. It's been a LONG wait, for sure!

Unfortunately, Eric's ability to walk has been noticeably more challenging these last several days. :-(

On Sunday, when it was hot, he went outside to load up his truck for his weekly dump run (which he had missed last weekend). When he came back in the house he had to sit and cool off for a while. When he got up, I noticed a new, struggled form of walking. The kind when one lifts a leg and plants it carefully. I said nothing about it. Later, when I mentioned putting "Weekly Dump Runs" on our list of requests, Eric responded, "Not yet."

Monday, I noticed a similar thing. He was completely worn after having spent some time outside early that morning. I asked him if he was okay, and he said, "I think I just get overly tired when I do things first thing in the morning." I asked, "What did you just do?" His reply? "I checked the oil level in your car."

That's all he had done and he was having another hard time walking, with those very careful steps.

Tuesday he went to his PT and mentioned his legs seeming to lose strength. The therapist noted - basically DOUBTED his current diagnosis - that his symptoms were progressing so quickly that it didn't "seem" like ALS.

He goes back to PT tomorrow, with two visits (about 60-90 mins. each) per week.

He is taking SO MANY supplements and has started drinking lots of Ensures to try to gain weight. He's still at 155, even though he is (I think) getting 3000 calories per day.

The other interesting thing I notice is that he no longer snores at night. You would think that would be a relief, but it's honestly a bit disconcerting.

Anyway, we are counting down the days until Monday!